2nd Patient Advocacy Certificate Training (PACT)

3.0 from 11 votes
Date: 09 - 11 May, 2018
Location: Sioux Falls, SD , United States


The Sanford and PPALS' PACT is an opportunity for individuals to enhance their professional development by enrolling in a comprehensive curriculum which focuses on increasing the competencies and expertise of patient advocates in the life sciences.

Over the course of two days, attendees will receive valuable training from a faculty who are recognized as experts in patient advocacy, drug development, scientific and medical research, regulatory/compliance, communications, non-profit governance and public policy. The curriculum has been designed to address the professional development needs of:

Individuals who work in the health and life sciences arena (Track I)
Individuals in senior leadership positions for a non-profit patient advocacy organization (Track II)

Upon completion of PACT, a Sanford/PPALS certificate will be awarded to all participants. Track I participants are encouraged to research, design, implement and successfully complete a Capstone Project for their professional development. Track II participants may complete a Reflection paper based on their experience.

Dates: May 9 to 11, 2017 (Tuesday through Thursday)

May 9, 2017: Evening Reception and Opening Session 5:00 pm CT
May 10, 2017: Track I & II Sessions 8:45 am CT to 5:30 pm CT
May 11, 2017: Track I & II Sessions 8:45 am CT to 5:30 pm CT

Location of Course: Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD 57104

Registration for Course: There is a limit of 60 participants for the entire program (Tracks I & II combined). Online registration is available through this link:

Deadline for course registration is May 5, 2017.

Registration fees: includes welcome reception, lunches, dinner, refreshment breaks on Sanford campus and course materials.

Track I: $1,250 for individuals working in an industry patient advocacy function (includes a PPALS annual membership fee of $300)
Track II: $250 for individuals in a senior leadership position for a non-profit health organization (Executive Director, Senior Staff person or Board of Directors Chair or Co-chair).

Hotel: A block of rooms has been reserved at the Club House Hotel and Suites, 2323 S Louise Avenue, Sioux Falls, SD 57106. Please call 1-800-CLUBINN; or 1-605-361-8700 to make your room reservations. Refer to the Sanford/PPALS room block for the special rates of $92.00 (1-4 person occupancy) plus 9.5% Tax + $2.00 City Occupancy Tax. Inform hotel that you are reserving a room with Sanford/PPALS group Rooms need to be reserved by April 14, 2017.

Travel: Sioux Falls is serviced by Sioux Falls Regional Airport, Joe Foss Field

Curriculum Content

General Sessions:

Drug Development
Introduction to CoRDS Registry
Patient Advocacy Evolution
Sanford: Who We Are; What We Do

Track I

Building Your Patient Advocacy Function
Clinical Trials and Patient Reported Outcomes
How to Best Approach Vendor Selection
Interacting with Advocacy Organizations and Stakeholders
Patient Advisory Boards
Public Policy: What is the role of industry in public policy?
The ROI of Patient Advocacy
Telling Your Patient Advocacy Story
Understanding the Best Practices and Challenges of Interacting with Non-Profit Sector

Track II (Patient Advocacy Organizations

Building and Sustaining Non-Profit Relationships
Communication for Patient Advocacy Organizations
CoRDS Registry for Patient Advocacy Organizations
Introduction to Rare Disease Public Policy
Maintaining a Patient Advocacy Organization: An Annual Check-up
Public Policy on State and Local Levels
Reimbursement and Access to Drugs
Understanding the Clinical Trial Process:
Working with Industry

Distinguished Faculty (confirmed): Jean Campbell, Principal, JF Campbell Consultants; Diane Dorman, Principal, DD Consulting; Patti Engel, President, Engage Health; Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics; Maria Hardin, Senior Advisor, JF Campbell Consultants; Nancy Harris, Principal, Harris Consulting; David LaGreca, Principal, David LaGreca & Associates; Meg Leal, Esq., President, MWL Consulting; Nita Patel, RN, Senior Director, Professional & Patient Advocacy, Amicus Therapeutics; David Pearce PhD, President of Research, Sanford Health, Director Children' Health Research Center; Chris Smith, President, SmithSolve; Barbara Wedehase, MSW, Principal, Wedehase Consulting; Barbara Wuebbels RN, Vice President, Patient Advocacy, Audentes Therapeutics.

3.0 from 11 votes