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2018 Patient Advocacy Certificate Training (PACT)

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3.1 from 26 votes
Date: 09 - 11 May, 2018
Location: Sioux Falls, SD , United States

PROFESSIONAL PATIENT ADVOCATES IN LIFE SCIENCES (PPALS) AND SANFORD RESEARCH ANNOUNCES THE 2018 PATIENT ADVOCACY CERTIFICATE TRAINING (PACT)

The Sanford and PPALS' PACT is an opportunity for individuals to enhance their professional development by enrolling in a comprehensive curriculum which focuses on increasing the competencies and expertise of patient advocates in the life sciences.

Over the course of two days, attendees will receive valuable training from a faculty who are recognized as experts in patient advocacy, drug development, scientific and medical research, regulatory/compliance, communications, non-profit governance and public policy. The curriculum has been designed to address the professional development needs of:

Individuals who work in the health and life sciences arena (Track I)
Individuals in senior leadership positions for a non-profit patient advocacy organization (Track II)

Upon completion of PACT, a Sanford/PPALS certificate will be awarded to all participants. Track I participants are encouraged to research, design, implement and successfully complete a Capstone Project for their professional development. Track II participants may complete a Reflection paper based on their experience.

Dates: May 9 to 11, 2018 (Tuesday through Thursday)

May 9, 2018:  Journalism - write a press release and news article 1 pm CT to 5:30 pm CT
May 9, 2018:  Evening Reception and Opening Session 6:00 pm CT
May 10, 2018: Track I & II Sessions 8:45 am CT to 5:30 pm CT
May 11, 2018: Track I & II Sessions 8:45 am CT to 5:30 pm CT

Location of Course: Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD 57104

Registration for Course: There is a limit of 60 participants for the entire program (Tracks I & II combined). Online registration is available through this link:

Location of Course:   Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD  57104

Registration for Course:  Online registration is available through Sanford Research

Deadline for course registration is May 1, 2018.

Track I
  • Building Your Patient Advocacy Function
  • Clinical Trials and Patient Reported Outcomes
  • How to Best Approach Vendor Selection
  • Interacting with Advocacy Organizations and Stakeholders
  • Patient Advisory Boards
  • Public Policy: What is the role of industry in public policy?
  • The ROI of Patient Advocacy
  • Telling Your Patient Advocacy Story
  • Understanding the Best Practices and Challenges of Interacting with Non-Profit Sector
Track II (Patient Advocacy Organizations)
  • Building and Sustaining Non-Profit Relationships
  • Communication for Patient Advocacy Organizations
  • CoRDS Registry for Patient Advocacy Organizations
  • Introduction to Rare Disease Public Policy
  • Maintaining a Patient Advocacy Organization: An Annual Check-up
  • Public Policy on State and Local Levels
  • Reimbursement and Access to Drugs
  • Understanding the Clinical Trial Process
  • Working with Industry
Distinguished Faculty (confirmed):
  • Jean Campbell, Principal, JF Campbell Consultants
  • Diane Dorman, Principal, DD Consulting
  • Patti Engel, President, Engage Health
  • Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics
  • Maria Hardin, Senior Advisor, JF Campbell Consultants
  • Nancy Harris, Principal, Harris Consulting
  • David LaGreca, Principal, David LaGreca & Associates
  • Meg Leal, Esq., President, MWL Consulting
  • Nita Patel, RN, Senior Director, Professional & Patient Advocacy, Amicus Therapeutics
  • David Pearce PhD, President of Research, Sanford Health, Director Children' Health Research Center
  • Chris Smith, President, SmithSolve
  • Barbara Wedehase, MSW, Principal, Wedehase Consulting
  • Barbara Wuebbels RN, Vice President, Patient Advocacy, Audentes Therapeutics
3.0
3.1 from 26 votes