2018 Patient Advocacy Certificate Training (PACT)

3.1 from 26 votes
Date: 09 - 11 May, 2018
Location: Sioux Falls, SD , United States


The Sanford and PPALS' PACT is an opportunity for individuals to enhance their professional development by enrolling in a comprehensive curriculum which focuses on increasing the competencies and expertise of patient advocates in the life sciences.

Over the course of two days, attendees will receive valuable training from a faculty who are recognized as experts in patient advocacy, drug development, scientific and medical research, regulatory/compliance, communications, non-profit governance and public policy. The curriculum has been designed to address the professional development needs of:

Individuals who work in the health and life sciences arena (Track I)
Individuals in senior leadership positions for a non-profit patient advocacy organization (Track II)

Upon completion of PACT, a Sanford/PPALS certificate will be awarded to all participants. Track I participants are encouraged to research, design, implement and successfully complete a Capstone Project for their professional development. Track II participants may complete a Reflection paper based on their experience.

Dates: May 9 to 11, 2018 (Tuesday through Thursday)

May 9, 2018:  Journalism - write a press release and news article 1 pm CT to 5:30 pm CT
May 9, 2018:  Evening Reception and Opening Session 6:00 pm CT
May 10, 2018: Track I & II Sessions 8:45 am CT to 5:30 pm CT
May 11, 2018: Track I & II Sessions 8:45 am CT to 5:30 pm CT

Location of Course: Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD 57104

Registration for Course: There is a limit of 60 participants for the entire program (Tracks I & II combined). Online registration is available through this link:

Location of Course:   Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD  57104

Registration for Course:  Online registration is available through Sanford Research

Deadline for course registration is May 1, 2018.

Track I
  • Building Your Patient Advocacy Function
  • Clinical Trials and Patient Reported Outcomes
  • How to Best Approach Vendor Selection
  • Interacting with Advocacy Organizations and Stakeholders
  • Patient Advisory Boards
  • Public Policy: What is the role of industry in public policy?
  • The ROI of Patient Advocacy
  • Telling Your Patient Advocacy Story
  • Understanding the Best Practices and Challenges of Interacting with Non-Profit Sector
Track II (Patient Advocacy Organizations)
  • Building and Sustaining Non-Profit Relationships
  • Communication for Patient Advocacy Organizations
  • CoRDS Registry for Patient Advocacy Organizations
  • Introduction to Rare Disease Public Policy
  • Maintaining a Patient Advocacy Organization: An Annual Check-up
  • Public Policy on State and Local Levels
  • Reimbursement and Access to Drugs
  • Understanding the Clinical Trial Process
  • Working with Industry
Distinguished Faculty (confirmed):
  • Jean Campbell, Principal, JF Campbell Consultants
  • Diane Dorman, Principal, DD Consulting
  • Patti Engel, President, Engage Health
  • Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics
  • Maria Hardin, Senior Advisor, JF Campbell Consultants
  • Nancy Harris, Principal, Harris Consulting
  • David LaGreca, Principal, David LaGreca & Associates
  • Meg Leal, Esq., President, MWL Consulting
  • Nita Patel, RN, Senior Director, Professional & Patient Advocacy, Amicus Therapeutics
  • David Pearce PhD, President of Research, Sanford Health, Director Children' Health Research Center
  • Chris Smith, President, SmithSolve
  • Barbara Wedehase, MSW, Principal, Wedehase Consulting
  • Barbara Wuebbels RN, Vice President, Patient Advocacy, Audentes Therapeutics
3.1 from 26 votes