First CEI Conference for building regional network of organizations for Rare Diseases

First CEI Conference for building regional network of organizations for Rare Diseases will contribute to strengthening of the capacities of the organizations and to increasing networking and communication between the organizations from the CEI region that work in the field of rare diseases. With this meeting we will contribute towards raising awareness (general public, government institutions, and medical professionals) about rare diseases in Macedonia and the CEI Region.

The focus of the project First CEI Conference for building regional network of organizations for Rare Diseases is on strengthening leadership in advocacy and lobbying for patients’ rights. The conference meeting is for sharing best practices and information on implementation of National Plans/Strategies on rare diseases in different countries.

Contact:

Phone: +38970705446

http://challenges.mk/