Sanfilippo Syndrome

1/27/2012 21:11

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This sweet boy on my brother Rick's lap is his son Jared.  My nephew Jared is a wonderful, happy 7 year old boy.  Unfortunately, he was diagnosed with Sanfilippo Syndrome when he was just 2 years old. This horrific disease is fatal and his life expectancy is 10-15 years old.  There is currently no treatment and no cure for this devastating disease.  My family bound together and made a promise to fight for Jared's life and we continue to do that today.  We were blessed when Jared came into our family and refuse to let him down.  Please help us raise awareness about MPS disease.  Sanfilippo Syndrome especially.  Thank you! 

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