Rare diseases need your voice, creative solutions and iWish.
iWish is designed to give rare diseases a voice and a face. Through your help, together we can help change the way the world looks at rare diseases by sensitizing people to their monumental needs.
How to participate:
Picture (optional) - With your contribution, together we can change the way the world looks at rare diseases. We are looking for:
- your artistic picture that will help the world connect or identify with a rare disease or diseases
- pictures that show the world what it is like to live with a rare disease
Contributions can be actual photographs or they can be artistic representations. Don't be afraid to reach out and be creative.
NOTE: any violent, racist, pornographic or offensive pictures will be banned.
iWish (required) - Now its time to write your iWish. Here are the points that you should include:
- A description about your picture (required if you submit a picture)
- Your iWish for a rare disease or diseases (required)
- Your experience with a rare disease or diseases (optional)
NOTE: any racist or offensive content will be banned.
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Myopathy- Myotubular
3/09/2013 17:40
My wish this year is that people around the world will take part in The Big Sunflower Project 2013 and grow a sunflower to raise awareness of …
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Williams Syndrome
12/06/2012 14:51
Inspired by my youngest son, Keith, age 9, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation …
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Giant Axonal Neuropathy
9/23/2012 00:49
In March of 2008, Lori Sames learned that her daughter, Hannah, then age four, had Giant Axonal Neruopathy. GAN a rare genetic disorder that slowly …
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Cryoglobulinemia - Essential Mixed
2/11/2012 20:07
I wish everyone would send a letter to their legislators to vote for the Ultra Act, "unlocking lifesaving treatments for Rare Diseases Act of 2012. Â …
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Sanfilippo Syndrome
1/27/2012 21:11
This sweet boy on my brother Rick's lap is his son Jared.  My nephew Jared is a wonderful, happy 7 year old boy. Unfortunately, he was diagnos …
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Nephropathic Cystinosis
5/04/2011 05:04
My wish is that children and adults with cystinosis would have access to a treatment that would not elevate the stigma already associated with being …
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Rare Disease Day Basel "wissen Heilt"
3/24/2010 12:24
I wish more people participate and visit the Rare Disease Day event organized by Access Association/CheckOrphan on Sunday 28 february 2010 in 2011.
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Inflammatory Breast Cancer
5/12/2009 16:32
The image is our t-shirt from our fundraising event for Squeak who has IBC. Like the heat of a flame we are spreading the word about Inflammatory …
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Mucopolysaccharidosis Type 1
5/12/2009 12:56
This is myself - I do not have all of the facial features of MPS I, although the ones that are there are what helped diagnose me - basically you just …
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Duchenne Muscular Dystrophy
5/12/2009 12:53
The child displayed in the picture suffers from Duchenne muscular dystrophy (DMD) a group of genetic disorders that affect the use of muscles in the …
