Rare diseases need your voice, creative solutions and iWish.

iWish is designed to give rare diseases a voice and a face. Through your help, together we can help change the way the world looks at rare diseases by sensitizing people to their monumental needs.

How to participate:

Picture (optional) - With your contribution, together we can change the way the world looks at rare diseases. We are looking for:

  • your artistic picture that will help the world connect or identify with a rare disease or diseases
  • pictures that show the world what it is like to live with a rare disease

Contributions can be actual photographs or they can be artistic representations. Don't be afraid to reach out and be creative.

NOTE: any violent, racist, pornographic or offensive pictures will be banned.

iWish (required) - Now its time to write your iWish. Here are the points that you should include:

  • A description about your picture (required if you submit a picture)
  • Your iWish for a rare disease or diseases (required)
  • Your experience with a rare disease or diseases (optional)

NOTE: any racist or offensive content will be banned.

  • Myopathy- Myotubular

    3/09/2013 17:40

    My wish this year is that people around the world will take part in The Big Sunflower Project 2013 and grow a sunflower to raise awareness of …

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  • Williams Syndrome

    12/06/2012 14:51

    Inspired by my youngest son, Keith, age 9, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation …

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  • Giant Axonal Neuropathy

    9/23/2012 00:49

    In March of 2008, Lori Sames learned that her daughter, Hannah, then age four, had Giant Axonal Neruopathy.¬† GAN a rare genetic disorder that slowly …

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  • Cryoglobulinemia - Essential Mixed

    2/11/2012 20:07

    I wish everyone would send a letter to their legislators to vote for the Ultra Act, "unlocking lifesaving treatments for Rare Diseases Act of 2012. ¬ …

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  • Sanfilippo Syndrome

    1/27/2012 21:11

    This¬†sweet boy¬†on my brother Rick's lap is his son Jared.¬†¬†My nephew Jared is a wonderful, happy 7 year old boy.¬† Unfortunately,¬†he was diagnos …

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  • Nephropathic Cystinosis

    5/04/2011 05:04

    My wish is that children and adults with cystinosis would have access to a treatment that would not elevate the stigma already associated with being …

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  • Rare Disease Day Basel "wissen Heilt"

    3/24/2010 12:24

    I wish more people participate and visit the Rare Disease Day event organized by Access Association/CheckOrphan on Sunday 28 february 2010 in 2011.

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  • Inflammatory Breast Cancer

    5/12/2009 16:32

    The image is our t-shirt from our fundraising event for Squeak who has IBC. Like the heat of a flame we are spreading the word about Inflammatory …

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  • Mucopolysaccharidosis Type 1

    5/12/2009 12:56

    This is myself - I do not have all of the facial features of MPS I, although the ones that are there are what helped diagnose me - basically you just …

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  • Duchenne Muscular Dystrophy

    5/12/2009 12:53

    The child displayed in the picture suffers from Duchenne muscular dystrophy (DMD) a group of genetic disorders that affect the use of muscles in the …

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