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Planning for Hope - Frontotemporal Dementia
Planning for Hope captures some of the most brilliant and passionate researchers exploring early diagnoses for this rare disease. Frontotemporal Disease or Dementia (FTD) has been misdiagnosed along with other neurodegenerative diseases that cause dementia in young people in their 40s, at the peak of their careers and in the prime of their lives. Most importantly, families have stepped …
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'Contact a Family' for Familes With Disabled Children
'Contact a Family' - One of the leading information resources for families of disabled children and those who work with them. Information on porphyria can be found here.
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'Contact a Family' for Familes With Disabled Children
A UK-wide charity providing advice, information and support to the parents of all disabled children; detailed information on patent ductus arteriosus can be found here.
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11Q Research and Resource Group
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1P36 Deletion
1p36 Deletion Syndrome also known as Monosomy 1p36 is a congenital genetic disorder characterized by moderate to severe intellectual disability, delayed growth, hypotonia, seizures, limited speech ability, malformations, hearing and vision impairment, heart defects and distinct facial features. Join our support community today and begin making friends, sharing information and support with …
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22q and You Center
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5p- Society
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Aarskog Syndrome Parents Support Group
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Abiding Hearts
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Ablynx
Ablynx, a biopharmaceutical company with headquarters in Ghent, Belgium, is engaged in the discovery and development of Nanobodies® to treat a range of serious human diseases. Nanobodies® are a novel class of antibody-derived therapeutic proteins. Because of their small size, unique structure and extreme stability, Nanobodies® combine the advantages of conventional antibody …