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INTERNATIONAL CONGRESS on RESEARCH of …
29 February – 2 March, 2012
Gebert Rüf Stiftung and BLACKSWAN Foundation, both active in supporting …
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Second ASID Congress of the African …
8–11 March, 2012
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Human Genome Meeting – Genetics and …
11–14 March, 2012
WelcomeProfessor Edison LiuPresident, Human Genome Organisation HGM 2012I …
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The 2nd National Conference on Blood …
12–14 March, 2012
The Division of Blood Disorders, National Center on Birth Defects and …
Events
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Raise Your Hand to Support People With Rare Diseases
Sunday, February 5, 2012
DEERFIELD, Ill. - Lundbeck announced its third annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance on February 29 to increase awareness of rare diseases. When an individual clicks the Raise Your Hand icon posted on the National Organization
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All in Your Head?
Sunday, February 5, 2012
Jennifer Dhuse is walking on eggshells. The Yorkville woman doesn’t know when, but soon her 4-year-old daughter, Sophia, will begin vomiting uncontrollably. Afterwards Sophia will go into a conscious coma, forcing the whole house into darkness and silence until she can fall asleep and quell her u
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Limerick Kidney Disease Victim to Be Honoured With Golf Tournament
Sunday, February 5, 2012
FRIENDS and relatives of a Limerick man who died from a rare kidney disease are to hold a charity golf tournament in his memory next monthBrian Hunt, a native of Raheen, was just 26-years-old when he passed away suddenly last May having spent most of his life battling the condition MPGNOn Friday
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EJ Scott Runs Marathons Blindfolded to Shed Light
Sunday, February 5, 2012
DIAGNOSED with a rare disease that robs him of his sight, Scott didn't let that stop him from running 12 marathons this yearMost of us can't imagine running a marathon. So picture completing the 26.2-mile trek blindfolded
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S. Ind. 8-month-old Continues to Fight Rare Skin Disease With Help From Community
Sunday, February 5, 2012
(WHAS11) -- The odds were not in Brody Curtis’ favor. But that adorable face says it all. He and his Charlestown, Ind. family are determined to fight“Even the best specialist on this disease, they can’t tell you exactly what’s going to happen because there are so many paths this disease
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Alternating Hemiplegia of Childhood Foundation President Releases Podcast on Rare Disease.
Sunday, February 5, 2012
Raleigh, NC - The Alternating Hemiplegia of Childhood Foundation (http://www.ahckids.org), a nonprofit organization dedicated to raising awareness of and funds for Alternating Hemiplegia of Childhood (AHC), a rare but debilitating neurological disorder causing temporary bouts of paralysis, has
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Rare Disease Bloggers Unite With "Blog Hop" To Raise Awareness for World Rare Disease Day 2012 and 1 Million for Rare™ Campaign
Sunday, February 5, 2012
DANA POINT, Calif. - The R.A.R.E. Project™ (www.rareproject.org) and The Global Genes Project™ (www.globalgenesproject.org), leading patient advocacy organizations representing the rare disease community, today announced they are hosting a rare disease 'blog hop' to kick off a month long awaren
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Constellation Brands Donates More Than $160,000 to Rally Foundation for Childhood Cancer Research Through National Campaign
Sunday, February 5, 2012
VICTOR, N.Y. - Constellation Brands, Inc., the world's leading premium wine company, presented a check today for approximately $163,000 to the Rally Foundation for Childhood Cancer Research (Rally) as part of its national "Corks Against Cancer" campaign. Constellation donated $1 for every bottle of
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Research-Based Pharmaceutical Industry Pledges 14 Billion Treatments to Help End Nine Neglected Tropical Diseases
Thursday, February 2, 2012
GENEVA - Today the research-based pharmaceutical industry announced donations of 14 billion treatments this decade to support the elimination or control of nine key neglected tropical diseases (NTDs). Averaging 1.4 billion treatments annually, the donations build upon companies' existing medicines
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Waterloo Girl Learning to Cope With Rare Disease
Tuesday, January 31, 2012
WATERLOO - Constant coughing and sniffling often prompts wary looks toward Amber Owens HughesBut the 12-year-old’s congestion is not caused by a cold or other contagious bugThe Waterloo girl suffers from primary ciliary dyskinesia, a rare genetic disorder that impairs the movement of microscopi