Biotech and Pharma Execs, Patient Groups and Prayers to Discuss Strategies to Expedite Orphan Drug Access

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Monday, January 30, 2012

NEW YORK - Orphan drug development has become more feasible than in previous years but we’ve barely scratched the surface: only 367 approved orphan drugs out of 6,800 rare diseases. We need to keep the momentum going.

Come April 10-13, over 300 key decision makers from orphan drug manufacturers, patient groups, payers and regulators will gather in DC at the 2nd annual World Orphan Drug Congress USA. Key speakers include Mike Astrue, Commissioner of the US Social Security Administration; Angus Russell, CEO of Shire, Yi-Ou Wang, Founder & President of China-Dolls Care and Support Association and Dr. Duraiswamy Navaneetham, Director of the Foundation for Research on Rare Diseases and Disorders India.

This event is designed to help biotech and pharma find new ways to expedite orphan drugs to patients, whether by partnering with new and innovative technology, streamlining clinical development, globalizing patient registry, eliminating manufacturing bottlenecks, reaching out to patients through targeted social media marketing or by guaranteeing and fast-tracking reimbursement.

Co-located with the World Pediatric Drugs Congress this event will be the premier event you need to go to in 2012!

Participants will learn:

  • • How to successfully launch an orphan drug
  • • How to guarantee and fast track reimbursement
  • • How to navigate through Health Reforms, HTAs and CERs
  • • How to engage patients and reach out to decision makers through targeted social media marketing
  • • How to articulate orphan drugs value proposition to various stakeholders

To register or learn more visit the link.

About Terrapinn:

Terrapinn is a business media company. Our products are trade exhibitions, conferences, training solutions and electronic and print publications. More information and a schedule of our events can be found on the link.

Contact:

Caroline Hornby, Marketing Director
Terrapinn
caroline.hornby@terrapinn.com
+1 646 619 1792

Source: Terrapinn

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