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    UCB Proudly Reinforces Long-Standing Commitment to Crohn's Disease Community at Digestive Disease Week 2012

    Monday, May 21, 2012

    ATLANTA - UCB, Inc., a leading biopharmaceutical company dedicated to the research and development of treatments for severe central nervous system and immunological disordersis marking Digestive Disease Week (DDW) 2012 in San Diego by reinforcing its commitment to improving the lives of patients w

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    NORD Forum Speaker: Bills Hold Major Promise for Rare Disease Patients

    Monday, May 21, 2012

    WASHINGTON - The House and Senate versions of "PDUFA V" are on track for timely congressional approval and represent the most significant legislative advances for the rare disease community since the Orphan Drug Act, speakers at a forum hosted by the National Organization for Rare Disorders (NORD)

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    Boy With Rare Illness Awaits Better Future

    Friday, May 18, 2012

    HUBLI: An 11-year-old boy suffering from a rare disease awaits government assistance as under the state health scheme, Vajpayee Arogyashree, he can receive only Rs 2 lakh, including an additional sum of Rs 50,000However, his complete treatment will cost Rs 6 lakh Mallikarjun Hadapad, a fourth st

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    Merrimack Families Taking Strides to Cure CF

    Friday, May 18, 2012

    Hannah Vigeant and Abby Stover are two 6-year-old girls from Merrimack finishing up kindergarten and getting ready for summer vacation like the rest of their classmatesFrom the outside, they appear to be two happy girls getting ready for a summer of adventures, but life for the two of them is anyt

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    NORD Forum Speaker: Bills Hold Major Promise for Rare Disease Patients

    Friday, May 18, 2012

    WASHINGTON - The House and Senate versions of "PDUFA V" are on track for timely congressional approval and represent the most significant legislative advances for the rare disease community since the Orphan Drug Act, speakers at a forum hosted by the National Organization for Rare Disorders saidTh

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    Mystery Monday: The Blue People of Eastern Kentucky

    Wednesday, May 16, 2012

    It's a story that's been told for generationsPeople with blue skin calling eastern Kentucky their home. As it turns out, it's not just a made up tale, but instead, a reality. In our "Mystery Monday," LEX 18 takes a closer look at the blue people of eastern KentuckyIt's called Troublesome Creek. I

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    26-Month-Old Triplets Reunited After Lifesaving Transplants

    Wednesday, May 16, 2012

    CHEEKTOWAGA, N.Y.- The ever-smiling Kira Palermo has always been one of threeThe 26-month old is one of a set of triplets that also includes sisters Annaliese and Sarah, but she is also part of a much more devastating trio. Kira is one of likely three people in the world with a rare disorder known

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    Africa's Hidden Scourge Needs an Integrated Approach

    Wednesday, May 16, 2012

    Buruli ulcer could spread as agriculture intensifies in Africa, making prevention research vital, says agro-eco-health expert Rousseau DjouakaThe intensification of lowland agriculture has been linked with the increased incidence of human diseases such as malaria, schistosomiasis and Buruli ulc

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    Diagnosing a Rare, Genetic Disease

    Tuesday, May 15, 2012

    Five years ago, a one-year-old boy named Connor was brought into my office for a second opinion. He had gone to a fine pediatrician on the Main Line who knew that something was very wrong, but did not know exactly what. As a baby, Connor had seemed healthy and normal until about 4 months when Conn

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    Twins Saved Despite Rare Genetic Condition

    Tuesday, May 15, 2012

    CHENNAI: When Priya heard that she was carrying twins, she was overjoyed. After 17 years of battling infertility the 37-year-old woman, who returned with her husband from the Gulf, finally approached the fertility experts at a hospital in Vadapalani about a year ago. “We attempted a few cycles of

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