The odds were not in Brody Curtis’ favor. But that adorable face says it all. He and his Charlestown, Ind. family are determined to fight.

“Even the best specialist on this disease, they can’t tell you exactly what’s going to happen because there are so many paths this disease could take,” Heather Curtis, Brody’s mother, said.

At 8-months-old, little Brody is thriving. Nowadays he is bandaged from his neck to his feet. He was born rare disease that’s known as EB. At birth he didn’t have any skin or skin so thin that is blisters easily and is slowly growing in.

“He is starting to be more playful. When he was younger he cried a lot. I think now we are used to it a little bit but he’s playing more and he’s talking,” Curtis said.

The bandages that cover Brody’s body are expensive; they run between $3-$6,000 a month.

“We have to wrap his hands because if you don’t wrap his hands, the way his skin heals it will draw his hands down to a nub and the skin will grow over it.”

That’s what happened to Brody’s foot. The only hospital that specializes in his disease is in Cincinnati. The community around Charlestown has been helping the Curtis family through fundraisers.

“All together I’d say they’ve raised over $10,000 for us we’ve had to make several trips and for doctors bills we use that money for that.”

Brody now has a therapist that comes to his Charlestown home.

The Curtis’ says Brody will be able to walk and they hope he can lead an active life. They feel encouraged and are taking steps with him in this journey.