National Foundation for Ectodermal Dysplasias

The mission of this foundation is to empower and connect people touched by ectodermal dysplasias through education, support and research.

The National Foundation for Ectodermal Dysplasias will be known;

  • As a recognized leader among health-related nonprofit organizations
  • For providing comprehensive services with loving care to individuals affected by ectodermal dysplasias and their families
  • For helping individuals and families benefit from early diagnosis and care
  • For spearheading research that ultimately develops cures