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5K Run/Walk to Raise Money for Local Baby with Rare Disease

2.5
2.5 from 6 votes
Thursday, July 19, 2018

POCATELLO, ID — A fun run will be held Saturday morning to raise money for a local baby with a disease that affects her joints and muscles.

Alydia Scoresby was born with arthrogryposis multiplex congenita, or AMC, which means her joints have minimal to no movement. Many of her muscles are weak or missing entirely and her body's overall mobility is extremely limited.

Emily Wolfley, 14, has been neighbors with the Scoresby family for years, and when Alydia's mother, Shaleah, found out during her pregnancy that her daughter would be born with AMC, Wolfley said she wanted to do something.

So she and her siblings, Katie Wolflley, 18, and Ryan Wolfley, 28, decided to organize a 5K run/walk to raise money for the Scoresby family to help cover their medical costs, as well as their transportation costs.

Shaleah and Alydia are currently in Florida as Alydia is undergoing her treatments at a hospital there. Shaleah said the cost of flying between Florida and Pocatello has been expensive, and her husband, Jared, has remained in Pocatello with their 2-year-old daughter for most of the summer.

The fun run will begin Saturday at 8 a.m. at the InterMountain Medical Clinic on Bench Road in Pocatello. Participants can register at pocatellofunrun.com or on the day of the race at 7 a.m.

All of the money raised from the race will go directly to the Scoresby family, and in addition to the race, the Wolfleys have also organized a raffle. They will be auctioning off a women's and mens' basketball signed by members of the Brigham Young University basketball team, as well as a football signed by Idaho State University football players and a volleyball signed by the Utah State University volleyball team, among other items.

"(The Scoresbys) mean a lot to the community," Emily said. "After Shaleah had her baby, we were just thinking about things that we could do to help her out because she does so much for us and other people."

Shaleah said that since Alydia was born, and even before, she has felt an outpouring of support from the community. She added that she was "overwhelmed" when the Wolfleys told her about their fundraising idea.

"I don't even have words for it," Shaleah said. "I recognize how much work it is and how much work they've put in. I can't even express how grateful I am to them and how impressed I am with what they've done. It means the world to me and my family."

According to Shaleah, Alydia will face a constant battle with AMC, even with the help of multiple surgeries, casting, splinting and therapy.

"One of the most overwhelming things to realize as a mother is that, sincerely, the battle is never over," she said. "Even if we get a certain range of motion in, say, (Alydia's) elbow, if we don't work on it every day, multiple times a day, it would go back to how it was."

Shaleah said she and Alydia are hoping to return to Pocatello in late August, but they will have to fly back and forth many more times in the forseeable future.

Though Shaleah and Alydia will be unable to attend the race, Shaleah said her husband and older daughter will be there.

According to Emily, about 65 people have registered for the race so far, but they expect there to be up to 150 participants.

Shaleah has started an Instagram page, @alydias_journey, for those who wish to keep up with Alydia and to possibly reach out to other mothers of children with AMC.

She said one mother already reached out to her through the Instagram page and met with Alydia when she was just 5 days old.

"My hope is that if there are people who have pregnancies or even little babies with AMC, they will find that support because I felt indescribably alone while I was pregnant," Shaleah said. "I want others that are in my boat to be able to reach out and know that they're not alone. And although it's overwhelming, it doesn't have to be scary."

Contact:
Idaho State Journal
305 S. Arthur
Pocatello, ID 83204
208-232-4161
newsroom@journalnet.com

Author: Madeleine Coles
Source: IDAHOSTATEJOURNAL
2.5
2.5 from 6 votes
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