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Chester woman gets artistic help to raise awareness of rare illness

3.0 from 1 vote
Tuesday, May 25, 2010

A Chester woman called upon the talents of a professional artist to help relaunch a website to help people suffering from a rare illness.

The new design by artist Rebecca J Kent has given a new look to The Information Point website on behalf of centronuclear myopathies sufferers.

The website was created nine years ago by Toni Abraham of Huntington, Chester, a sufferer of the neuromuscular condition.

Toni was diagnosed with the condition in 1998, aged just 28, alongside her father Mike, aged 50, who both suffer a minor form of the condition.

Toni said: “I created the website to raise awareness of the condition as it is very rare and the symptoms are often unknown. I wanted to connect with other people who suffer from the condition.”

The neuromuscular condition has similar effects of muscle weakness, it causes low muscle tone, effecting children and adults at various stages.

Toni added: “The minor form of the condition means my father and I have trouble walking long distances and climbing stairs.

“But it can affect people in a range of different ways, some worse than others, so severe that some people are in wheelchairs.”

Toni was aware of artist Rebecca J Kent’s work and contacted her hoping to receive a fresh look for the website, and to connect with people across the world.

She added: “Rebecca designed the new banner image on the website, she was brilliant, an excellent help.

“The image represents the diversity of the condition and the website has been a great success, we have connected with sufferers from South Africa, America and Australia.”

For more information on centronuclear myopathy or to share your story about the condition, visit http://centronuclear.org.uk/

 

© 2010 owned by or licensed to Trinity Mirror North West & North Wales Limited

Author: By Chelsey McFarlane
Source: Chester Chronicle
3.0 from 1 vote
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