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Community rallies behind Virginia boy with rare genetic disease

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Thursday, May 23, 2019

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VINTON, Va. - This weekend, some organizations in the Vinton community are helping one of their own. 

Organizing a weekend fundraiser for Mason Moses.

Mason is just like your typical 8-year-old boy and has some favorite things he likes to do. 

"My Nintendo, my iPod, my leapfrog, my iPad and drawing," said Mason Moses, diagnosed with Fanconi anemia.

But Mason's life is not a perfect picture. 

"I have a rare disease called Fanconi anemia and it can make my blood sick and my bone marrow fail," said Mason Moses, diagnosed with Fanconi anemia.

Around three years ago, Mason and his mom Ashleigh got the diagnosis. 

"Fanconi anemia is a rare, inherited recessive DNA repair disorder. So Mason's body is not able to repair any cell that is damaged and it also makes all of his blood cells deplete. They fail and his marrow will fail. So that's why we are in the process of heading to Cincinnati for a bone marrow transplant and there is no cure, so a bone marrow transplant only buys us time," said Ashleigh Pinion, Mason's mom.

Mason's family is hoping to stay at the Ronald McDonald house while they are in Cincinnati. Some of the money raised this weekend will go there. 

"I want donations so I can give them to the Ronald McDonald house," said Mason Moses, diagnosed with Fanconi anemia.

His fight is extraordinary and his family says they have learned a thing or two from this journey.   

"Enjoy every moment that you have. Time is precious, and sometimes you don't realize that until your time is limited. So enjoy every moment that you have with the people you love," said Ashleigh Pinion, Mason's mom.

Source: wric
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4.0 from 1 vote
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