People News

Join Us for the Annual Community Congress In-Person Meeting on October 24th

1.5 from 2 votes
Thursday, September 20, 2018

Washington, DC - This is a reminder to register for the annual members-only in-person Community Congress meeting on Wednesday, October 24th. The morning session is open to both members and prospective members and provides an introductory background, overview of each working group, and a keynote address. The afternoon session is restricted to members only and will consist of an in-depth policy discussion. A draft agenda is available below.


9:00 am - Registration Opens

10:00 am - 12:00 pm - Plenary Session      

12:00 pm - Networking Lunch 

12:30 pm - Working Group Breakout Sessions

2:30 pm - Meeting Concludes

We hope you will join us for this in-person meeting to weigh in on both working group projects as well as the Foundation's 2019 policy and advocacy focus.
During the morning plenary session, an update on our legislative initiatives will be provided. Participants will also have the opportunity to learn about the activities each working group is undertaking.
The member-only meeting in the afternoon will feature breakout sessions for the Newborn Screening, Public Policy and Regulatory Working Groups. The groups will discuss and create action plans for 2019 activities.

Community Congress Annual Meeting

Wednesday, October 24th, 2018
Public Plenary Meeting: 9:00 am - 12:30 pm ET
Members-Only Meeting: 12:30 pm - 2:30 pm ET
City Club of Washington

555 13th St NW, Washington, DC

Grant Kerber, Director of Communications and Special Events
Source: EveryLife Foundation for Rare Diseases
1.5 from 2 votes
Free Newsletter
by Abidemi Uruejoma
by Abidemi Uruejoma