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Join Us Tomorrow for RDLA's Legislative Webinar on March 21st at Noon(ET) - Snow or Shine

3.03225806452
3.0 from 31 votes
Tuesday, March 20, 2018

RDLA's March Legislative Webinar

Wednesday, March 21st, 2018

12:00 – 1:00 pm ET

Register

Agenda

1. The Rare Disease Advancement, Research, and Education Act (RARE Act) of 2018 (H.R. 5115), Charlie Arnowitz, Legislative Assistant, Office of Rep. André Carson

2. Emergency Medical Protocols, Darlene Shelton, Founder/President, Danny's Dose Alliance, Inc

3. Right to Try, Paul Melmeyer, Director of Federal Policy, National Organization for Rare Disorders (NORD)

4. Rare On The Road, Rare Disease Leadership Tour, Lisa Schill, Event Development Consultant, EveryLife Foundation for Rare Diseases

5. Nominations for the 2018 RareVoice Awards, In District Lobby Days, Julia Jenkins, Executive Director, EveryLife Foundation for Rare Diseases

The agenda is open.

Contacts:
If you would like to speak, please contact Julia Jenkins at JJenkins@everylifefoundation.org

Source: Everylifefoundation
3.03225806452
3.0 from 31 votes
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