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Mayor makes proclamation in honor of seven year old with rare disease

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3.8 from 4 votes
Thursday, May 16, 2019

 Missouri, USA - St. Joseph Mayor Bill McMurray proclaimed that 17th May, Friday would be known as “World Neurofibromatosis (NF) Awareness Day” in the city.

The mayor was assisted with his proclamation by DeLilah Bigham, a 7-year-old who has been in recovery from the rare genetic disorder that causes tumors to grow around the nerves. McMurray said he was made aware of the disease by DeLilah’s mother, Makayla Bigham.

“This is a very rare disease and I had never heard of it before,” McMurray said. “And the family is coping with it and working with it as they’re helping their daughter on the path to becoming better. Anything I can do to encourage them and help them I’d like to do it.”

According to the proclamation, 2 million people around the world are living with NF, which along with causing tumors to grow on the nerves throughout the body, it can have an effect on brain development, cardiovascular systems bones and skin.

Makayla said she reached out to the mayor in hopes that more people would know about the disease and support fundraisers to find a cure.

“I feel like there’s just not a lot of people who know what it is, and I can understand why,” Bigham said. “I didn’t know what it was until she was diagnosed. So I feel like, in order to raise money for foundations to find treatments and a cure, we have to raise awareness first.”

As for DeLilah, who was excited to meet the mayor, the impact of the proclamation was lost on the young girl, but she said she thought the mayor was “awesome.”

 

Author: Jessika Eidson
Source: newspressnow
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3.8 from 4 votes
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