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Shire Recognizes MPS Awareness Day 2018 with Digital Campaign and Global Events Focused on Increasing Diseases Awareness

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Wednesday, May 16, 2018

LEXINGTON, Mass. - Shire plc (LSE: SHP, NASDAQ: SHPG) announces its third annual #FlyforMPS campaign to allow rare champions around the world to recognize and raise awareness for patients and caregivers affected by MPS (mucopolysaccharide) diseases. These rare, genetic, metabolic diseases affect one in 25,000 births.1

Shire's #FlyforMPS campaign was created in support of MPS Awareness Day, held annually on May 15th. The campaign's website,, features disease awareness information, stories of patients living with different MPS diseases around the world, an image gallery encouraging people to submit photos in support of the MPS community and an interactive game. To help raise awareness, the campaign invites people to read and share patient stories on their social media platforms, with each share 'fueling' a virtual plane to fly to a new destination to visit a new MPS patient. The campaign was developed in collaboration with the National MPS Society and U.K. MPS Society.

"Every day, Shire works as a champion for the millions of people affected by rare, genetic diseases, to progress potentially ground-breaking research, improve time to diagnoses, provide support and address some of the grave unmet needs of patients around the world," said Sarah Creviston, Vice President and Global Head of Patient Advocacy and Public Affairs, Shire. "Our #FlyforMPS campaign is an illustration of our dedication to the MPS community and our commitment to advocate for rare disease patients around the world."

"International MPS Awareness Day is an opportunity to recognize children and families who both live and have lost their lives to MPS Diseases. MPS Day started in the United States in 2006 as voted on by both the House and Senate. We are thrilled this has grown to a global campaign over the years." said Terri Klein, CEO and President, National MPS Society. "Campaigns like #FlyforMPS help us achieve our goals of increasing awareness about these conditions, while also making sure that MPS patients are never forgotten."

To learn more about Shire's #FlyforMPS campaign and to join the movement to raise awareness for MPS, visit

About Mucopolysaccharide (MPS) Diseases
Mucopolysaccharidoses (MPS) are a group of rare, genetic, metabolic diseases known as lysosomal storage diseases (LSDs). Patients with these conditions do not have enough, or any, of an enzyme that is needed to break down a sugar, called a mucopolysaccharide or glycosaminoglycan (GAG) in the body.1 As a result, GAGs build up and can cause damage throughout the body, including in the heart, bones, joints, respiratory system and central nervous system, leading to a shortened life span.

There are seven types of MPS disease, each caused by a different missing or inadequate enzyme required to break down GAGs. All of the MPS disorders are progressive, meaning they worsen with time. They are also heterogeneous in nature, meaning they can affect different people differently, often resulting in a spectrum of clinical severity from mildly affected to severe.

The seven different types of MPS include:
- MPS I (Hurler, Hurler-Scheie, or Sheie syndrome)
- MPS II (Hunter syndrome)
- MPS III A-D (Sanfilippo syndrome)
- MPS IV A, B (Morquio syndrome)
- MPS VI (Maroteaux-Lamy syndrome)
- MPS VII (Sly syndrome)

People with MPS share some similar features but the severity of the different MPS diseases varies greatly. All MPS diseases are inherited in a recessive pattern, meaning that some people might be carriers of the disease but not actually have MPS. MPS II is different from the other MPS diseases because its inheritance is X-linked, meaning that mainly males are affected.

About MPS Awareness Day
MPS Awareness Day is an annual awareness day dedicated to honour patients and caregivers affected by this category of rare genetic diseases. Each year on May 15th, organizations around the world work to improve awareness, with the goal of achieving earlier diagnosis, improving research into treatment options and gaining a better understanding of the needs of those living with MPS. MPS Awareness Day is organized by the National MPS Society and the International MPS Network.

For information about U.S. activities for MPS Awareness Day, go to

About Shire
Shire is the global leader in serving patients with rare diseases. We strive to develop best-in-class therapies across a core of rare disease areas including hematology, immunology, genetic diseases, neuroscience, and internal medicine with growing therapeutic areas in ophthalmics and oncology. Our diversified capabilities enable us to reach patients in more than 100 countries who are struggling to live their lives to the fullest.

We feel a strong sense of urgency to address unmet medical needs and work tirelessly to improve people's lives with medicines that have a meaningful impact on patients and all who support them on their journey.

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Source: Shire Plc
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