Close
Close
People News

Silhouette shares insight into rare genetic disorder on 'Inside Edition'

1.25
1.2 from 4 votes
Monday, October 08, 2012

Learn more about:

Clinical Trials

Ellie White, a member of the dance group Silhouettes, the second place finishers of America's Got Talent's sixth season, recently appeared on Inside Edition to provide insight into her life dealing with a rare disorder called Wolfram syndrome.

Wolfram syndrome is a genetic disorder which only affects 1 in 500,000 people, causing diabetes, deafness and optic atrophy, among other possible disorders.

There is no known treatment for Wolfram syndrome beyond managing the resulting complications. Life expectancy of the average person suffering from this syndrome is about thirty years.

White was diagnosed with diabetes at the age of three, and her condition has already progressed to the point that, on her eleventh birthday, as was described in the Inside Edition piece, she was unable to see the colors on her birthday cake.

Fitting, therefore, that White became a member of a dance group with a purely visual appeal and which became infamous on America's Got Talent for its continuous use of inspiration themes with ham-fisted delivery.

Despite a great deal of resentment towards the Silhouettes for their constant repetition of themes and failure to capitalize on the creative potentials of their act, they finished in second place, losing out only to Landau Eugene Murphy Jr.

The success of Silhouettes has since provided White with a platform to explain her disease to the world, as well as to promote the Ellie White Foundation for Rare Genetic Disorders.

Author: By Michael Ross
Source: Examiner
1.25
1.2 from 4 votes
Free Newsletter
Videos