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The Second Annual 'Hope for Holden to Benefit the Dup15q Alliance' on September 16 at Springfield's Chisholm Community Center

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Monday, September 11, 2017

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The second annual "Hope for Holden to benefit the Dup15q Alliance" tricky tray and Boot camp class is being held on September 16 at the Chisholm Community Center on 100 S. Springfield Ave.. The doors open at 10 a.m. and the event will go until 3 p.m.

There will be a boot camp with Tovah Segelman that will begin promptly at 11:30 a.m. Basket auction winners will be announced starting at 2:00 p.m. You do NOT need to present to participate OR win--ask about our preview participation option!

To register for the event or donate please click on the link, Hope for Holden. The cost of the event is $5 and children are free. The cost of the class is $15 and there is no charge if you are already registered. Free childcare available for children ages 1-10 for any parent participating in the class.

You can purchase a t-shirt for $20 through the website only. If you do purchase a t-shirt, please wear a "Holden's Heroes" shirt or your favorite superhero shirt because you are HOLDEN'S HERO!

Lauren Weissberg is the Springfield resident. She and her husband, Marc have two sons, Reid and Holden. Holden is over three years old and on May 16, 2016, he was diagnosed with Dup15q syndrome. That means he has an isodicentric duplication of his 15th chromosome. If you have not heard of it, do not be surprised, there are only about 1,200 people with Dup15q. The disease is not well known or researched and to date, there is no cure.

The Weissbergs are working parents balancing full time jobs, raising a family and also coping with the challenges of raising a child with a very rare disease that is not well understood and lacks well established and effective treatments. They approach the challenge as "Team Weissberg" and get a great deal of support from many in the Springfield community and beyond it. Their sources of strength include their faith and determination to increase the visibility of the disease in hopes it will lead to better treatment and eventually a cure.

They have increased visibility through the media and fund raisers. Their first fund raiser took place a year ago at CKO Kickboxing in Springfield

The Dup15Q Alliance was created (http://www.dup15q.org/ to help better understand the disease. From its website, "Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome." Lauren says, "The motto of Dup15q is Believe."

Here is the link to the donor page - https://dup15q.donorpages.com/HopeforHoldenWeissberg/.

 

Author: Chip Dickson
Source: Tapinto
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