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Walk the Square event to benefit those afflicted by rare genetic disorder

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Wednesday, May 07, 2014

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A May 10 event in Colusa will help to bring awareness and support for families affected by Hereditary Angioedema (HAE).

HAE is a very rare genetic disease characterized by unpredictable episodes of internal and external swelling. Swelling may occur in the hands, feet, face and swelling of the larynx (throat) may result in suffocation and death. Swelling of the abdomen causes nausea, vomiting, dangerous loss of blood pressure and excruciating pain. 1 in 10,000 to 1 in 50,000 persons are estimated to have HAE in the United States — about 6,000 people including five known Colusa residents.

A benefit walk is scheduled to begin at the Colusa Swimming Pool Park under the Pavilion. The event is named "Walk the Square for HAE C.A.R.E." (Cure Awareness Research Education).

The project goal is to raise as much support for The United States Hereditary Anigoedema Association as possible. All proceeds from our fundraiser will go directly to benefit the US HAEA. Registration will begin at 8:30 a.m. — registration fee $10. Walk will begin at 9 a.m. followed by guest speaker Dr. Rajan Merchant, Dignity Health, Woodland CA.

Participants are asked to wear blue.

For any further information, email: walkthesquare@live.com or call Crystal Heidrick at (530)635-7307

Source: Sun Herald
3.66666666667
3.7 from 3 votes
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