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Patient Caregiver’s Journey in ASMD
264 views
2.92307692308
2.9 from 26 votes

A mother of a patient with Acid Sphingomyelianse Deficiency (ASMD) talks about the journey she and her family had taken to help diagnose her son with ASMD. She highlights the support she has received from the National Niemann-Pick Disease Foundation and encourages further education in lysosomal storage disorders among the society.

by Abidemi Uruejoma
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92 views 2 months ago
2.92307692308
2.9 from 26 votes
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